{"id":1000009232,"date":"2023-01-03T09:49:13","date_gmt":"2023-01-03T08:49:13","guid":{"rendered":"https:\/\/forum-engagement.org\/?p=1000009232"},"modified":"2023-01-03T09:49:14","modified_gmt":"2023-01-03T08:49:14","slug":"defigena-2022-12eme-edition-un-challenge-pour-donner-du-souffle-a-la-mucoviscidose","status":"publish","type":"post","link":"https:\/\/forum-engagement.org\/2024\/defigena-2022-12eme-edition-un-challenge-pour-donner-du-souffle-a-la-mucoviscidose\/","title":{"rendered":"DEFIGENA 2022, 12\u00e8me \u00e9dition, un challenge pour donner du souffle \u00e0 la mucoviscidose"},"content":{"rendered":"\n

Defigena est un \u00e9v\u00e8nement sportif et familial cr\u00e9\u00e9 par le Groupe Adela\u00efde (Verlingue, G\u00e9n\u00e9ration et Cocoon) organis\u00e9 en collaboration avec l\u2019Association Ga\u00e9tan Sale\u00fcn pour r\u00e9colter des fonds au profit de la recherche sur la mucoviscidose.<\/strong><\/p>\n\n\n\n

Defigena est devenu en 10 ans un rendez-vous incontournable pour les coureurs et les marcheurs, mais aussi pour toutes celles et ceux, petits ou grands, qui souhaitent soutenir la recherche sur la mucoviscidose en famille ou entre amis.
Depuis la premi\u00e8re \u00e9dition en 2011, pr\u00e8s de 300 000 \u20ac ont \u00e9t\u00e9 r\u00e9colt\u00e9s.<\/p>\n\n\n\n

Du 6 au 30 juin : Defigena propose un challenge virtuel via l\u2019application Kiplin*<\/strong><\/p>\n\n\n\n

Cette ann\u00e9e, Defigena propose \u00e0 toutes celles et ceux qui veulent soutenir la recherche de participer au Defigena Challenge : un challenge de pas via l\u2019application Kiplin.<\/p>\n\n\n\n

Gratuite et ouverte \u00e0 tous, l\u2019application mobile permet \u00e0 chaque participant, partout en France, de contribuer \u00e0 la lutte contre la maladie en s\u2019inscrivant au challenge. Le Defigena Challenge consiste \u00e0 cr\u00e9er des \u00e9quipes virtuelles, de 1 \u00e0 5 membres, et de cumuler le plus de points possibles gr\u00e2ce au compteur de pas et aux diff\u00e9rents d\u00e9fis (quizz, jeu concours photos\u2026) organis\u00e9s sur la p\u00e9riode. Le Groupe Adela\u00efde s\u2019engage d\u00e8s \u00e0 pr\u00e9sent \u00e0 faire un don de 10\u20ac par \u00e9quipe ayant r\u00e9alis\u00e9 au moins 10 000 points sur Kiplin.<\/strong><\/p>\n\n\n\n

Les participants auront \u00e9galement la possibilit\u00e9 de faire un don libre pour la recherche contre la mucoviscidose via la plateforme Helloasso<\/a> les fonds seront int\u00e9gralement revers\u00e9s au laboratoire du Professeur F\u00e9rec, et un re\u00e7u fiscal adress\u00e9 \u00e0 chaque donateur.<\/p>\n\n\n\n

Enfin, les participants qui le souhaitent pourront devenir ambassadeur de l\u2019\u00e9v\u00e8nement en partageant des photos, des infos sur les r\u00e9seaux sociaux et en faisant conna\u00eetre la cause autour d\u2019eux.<\/p>\n\n\n\n

\"\"<\/a><\/figure>\n\n\n\n

Continuer \u00e0 financer la recherche<\/strong><\/p>\n\n\n\n

La mucoviscidose est une grave maladie g\u00e9n\u00e9tique aux multiples sympt\u00f4mes. Parmi eux, le plus connu est celui qui touche les voies bronchiques provoquant toux, expectorations et difficult\u00e9s respiratoires. Avec la pr\u00e9valence la plus \u00e9lev\u00e9e de France, le Finist\u00e8re s\u2019av\u00e8re particuli\u00e8rement concern\u00e9 par la maladie.<\/p>\n\n\n\n

Pour cette 12\u00e8me \u00e9dition de Defigena et malgr\u00e9 l\u2019am\u00e9lioration de la situation sanitaire, les partenaires historiques restent mobilis\u00e9s pour soutenir la recherche et relever le d\u00e9fi contre la mucoviscidose. Cette ann\u00e9e, les fonds r\u00e9colt\u00e9s ont, \u00e0 nouveau, pour objectif de financer un poste de doctorant au sein du Laboratoire Inserm de Brest dirig\u00e9 par le Professeur Claude F\u00e9rec.<\/p>\n\n\n\n

Pendant tout le mois de juin, Defigena communiquera sur l\u2019\u00e9v\u00e8nement et animera la communaut\u00e9 depuis son site www.defigena.fr et sur ses r\u00e9seaux sociaux.<\/strong><\/p>\n\n\n\n

*A propos de Kiplin<\/strong><\/em>
Kiplin est un \u00e9diteur de jeux de sant\u00e9 qui pr\u00e9vient et lutte contre la s\u00e9dentarit\u00e9 des collaborateurs en les faisant bouger gr\u00e2ce au jeu ! Kiplin mise sur la gamification et le collectif pour changer les habitudes de vie li\u00e9es \u00e0 la pratique d\u2019une activit\u00e9 physique.<\/em>
https:\/\/www.kiplin.com\/fr\/<\/em><\/p>\n\n\n\n

Contacts presse : <\/strong>
Eric Steunou \u2013 G\u00e9n\u00e9ration \u2013 T\u00e9l. 02 98 51 39 70 \u2013 eric.steunou@generation.fr<\/p>\n\n\n\n

A propos de Defigena<\/strong><\/em>
Defigena est n\u00e9 d\u2019une volont\u00e9 commune de Verlingue, G\u00e9n\u00e9ration, l\u2019association Ga\u00e9tan Sale\u00fcn et le Professeur Claude F\u00e9rec (laboratoire Inserm, Brest) de r\u00e9colter des fonds pour soutenir la recherche contre la mucoviscidose. Et ainsi permettre aux chercheurs d\u2019approfondir leurs perspectives sur les nouveaux traitements de cette maladie g\u00e9n\u00e9tique qui touche principalement les fonctions respiratoires et digestives. En France, 6 000 patients sont touch\u00e9s par cette pathologie, dont 200 nouveaux-n\u00e9s atteints chaque ann\u00e9e. Avec une forte disparit\u00e9 r\u00e9gionale due aux socles g\u00e9n\u00e9tiques locaux, la Bretagne est 2 fois plus touch\u00e9e par cette maladie que le reste de la population. Les dons sont enti\u00e8rement revers\u00e9s au laboratoire Inserm, devenu une r\u00e9f\u00e9rence mondiale en mati\u00e8re de recherche sur les maladies g\u00e9n\u00e9tiques, et en particulier sur la mucoviscidose. Les enjeux sont de poursuivre les engagements et faire \u00e9voluer l\u2019esp\u00e9rance de vie d\u2019un patient, en investissant dans du mat\u00e9riel de pointe et en finan\u00e7ant un poste de chercheur doctorant chaque ann\u00e9e. www.defigena.fr<\/em><\/p>\n\n\n\n

A propos d\u2019Adela\u00efde<\/strong><\/em>
Le Groupe Adela\u00efde est sp\u00e9cialis\u00e9 dans le conseil, l\u2019interm\u00e9diation, la distribution et la gestion en assurances avec pour raison d\u2019\u00eatre de permettre \u00e0 ses clients d\u2019entreprendre gr\u00e2ce \u00e0 une bonne ma\u00eetrise de leurs risques en les aidant \u00e0 prot\u00e9ger leurs activit\u00e9s et leurs collaborateurs. Depuis plus de 85 ans, le Groupe n\u2019a jamais cess\u00e9 d\u2019entreprendre, de cro\u00eetre et de se r\u00e9inventer pour devenir l\u2019un des principaux acteurs du courtage en assurances en France avec trois entreprises en succ\u00e8s : Verlingue, G\u00e9n\u00e9ration et Cocoon. Croissance organique et acquisitions strat\u00e9giques, expansion internationale et transformation digitale sont les 4 axes que s\u2019est fix\u00e9 le Groupe pour atteindre son objectif de b\u00e2tir un grand groupe de courtage en assurances de dimension europ\u00e9enne, familial et ind\u00e9pendant.<\/em>
\u2022 2 200 collaborateurs<\/em>
\u2022 2 600 M\u20ac de primes n\u00e9goci\u00e9es pour le compte de ses clients<\/em>
\u2022 2,1 millions d\u2019assur\u00e9s (Frais de sant\u00e9 et pr\u00e9voyance)<\/em>
\u2022 27 implantations en France et en Europe (Grande-Bretagne, Suisse, Portugal)<\/em>
www.adelaidegroup.fr<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

Defigena est un \u00e9v\u00e8nement sportif et familial cr\u00e9\u00e9 par le Groupe Adela\u00efde (Verlingue, G\u00e9n\u00e9ration et Cocoon) organis\u00e9 en collaboration avec l\u2019Association Ga\u00e9tan Sale\u00fcn pour r\u00e9colter des fonds au profit de la recherche sur la mucoviscidose. Defigena est devenu en 10 ans un rendez-vous incontournable pour les coureurs et les marcheurs, mais aussi pour toutes celles […]<\/p>\n","protected":false},"author":78,"featured_media":1000009233,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":{"0":"post-1000009232","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-non-classe"},"yoast_head":"\nDEFIGENA 2022, 12\u00e8me \u00e9dition, un challenge pour donner du souffle \u00e0 la mucoviscidose | Forum Engagement<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"DEFIGENA 2022, 12\u00e8me \u00e9dition, un challenge pour donner du souffle \u00e0 la mucoviscidose | Forum Engagement\" \/>\n<meta property=\"og:description\" content=\"Defigena est un \u00e9v\u00e8nement sportif et familial cr\u00e9\u00e9 par le Groupe Adela\u00efde (Verlingue, G\u00e9n\u00e9ration et Cocoon) organis\u00e9 en collaboration avec l\u2019Association Ga\u00e9tan Sale\u00fcn pour r\u00e9colter des fonds au profit de la recherche sur la mucoviscidose. 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